5 Reasons Why the Ice Bucket Challenge Will Find a Cure
5. We are having our Magic Johnson moment. When the basket legend announced that he was HIV positive, he instantly brought the disease into every home in America. Overnight, everyone knew someone with...
View ArticleWheel Life Changes
There are so many scary life experiences and dramatic changes that lie ahead of anyone diagnosed with ALS. When you are at your earliest symptom, which may be as innocent as a twitching finger, the...
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The Most Deserving Sportsman of the Year
This summer, baseball celebrated the 75th anniversary of Lou Gehrig’s Luckiest Man in the World speech. Seventy-five years since the man who never missed a game was mysteriously afflicted by...
View ArticleJust a Lil’ Potty Talk
Anyone who is familiar with ALS knows that it is tenacious and a master thief. It robs its victims of the physical use of their bodies, but maybe even more damaging is how it rapidly steals away...
View ArticleI Am Not Free to Move About the Cabin
We have all been there before. White knuckles wrapped around the steering wheel, constant glances at the clock, turning down the radio while you go over your mental packing list. That frantic ride to...
View ArticleImpractical Jokers
-by Rob Irvine On Saturday, May 2nd my wife and I had plans to go see The Tenderloins, aka the Impractical Jokers, at their Foxwoods show. Our friend pulled some strings to arrange a meet and greet...
View ArticleALS and the Community
We live in a small, rural town where pretty much everyone knows or at least knows of everyone else. Other than three years, I have lived here my whole life. There can certainly be downfalls because of...
View ArticleA Breathtaking View 100 Ft Below Ground
After living in New York City for almost 7 years, I feel like I am very familiar with most neighborhoods and certainly the many iconic buildings throughout Manhattan…or so I thought. I recently visited...
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Advocates Come In All Different Shapes… And Sizes
This is a perfect example of how a movement begins. Awareness can start with one person, even an 8 year old. We are so proud of Vivian and grateful for her effort and dedication.
View ArticleA Great Example of Community Support
Last weekend was the third annual Running 4 Rob 5k event to support our family. This all started in 2013 when Melissa wanted to get a group of friends to participate in the Team Gleason Virtual 5k and...
View ArticleThe Summer Sequel You MUST See!
I have always been a movie guy. As long as I can remember, the entire movie-going experience has been a source of excitement and escapism. When I lived in New York I had a Saturday morning ritual: 1...
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The Cubs Are Doing What Modern Medicine Isn’t
Being a child of the ‘80s and growing up in Florida, when it came to baseball there was really no other team to root for other than the Chicago Cubs. Before the Miami (formerly the Florida) Marlins...
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Amazing Race Ain’t Got Nothing on ALS
The pope, the president and I walk into a bar. Ok, it didn’t go exactly like that but you get the idea. A couple weeks ago we had our foundation’s fourth annual culinary spectacular at Hearth...
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My ALS by the Numbers
20 – It takes approximately 20 minutes for me to get out of bed every morning. I know what you’re thinking, “Me too, after I hit snooze a couple of times.” But it literally takes 20 minutes from the...
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How I Happily Became a Junkie Again
Before last Christmas, I would look around any room full of people and notice one thing they all had in common. And I mean from my living room to a crowded coffee shop. Everyone was on their phone!...
View ArticlePlease Don’t Take My Funny
The list of elements of daily living that ALS tenaciously takes away is never-ending. There’s the big stuff like walking or use of your arms, the deterioration of your voice and ultimately the ability...
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Don’t Worry
I look at our whiteboard countdown to our Ohio Trip and the numbers keep shrinking. Seven more days until I get to show my family the sleepy little town where I came from. My carefully guarded...
View ArticleAMAZING RACE AIN’T GOT NOTHING ON ALS
The pope, the president and I walk into a bar. Ok, it didn’t go exactly like that but you get the idea. A couple weeks ago we had our foundation’s fourth annual culinary spectacular at Hearth...
View ArticleUntitled
I have always been a movie guy. As long as I can remember, the entire movie-going experience has been a source of excitement and escapism. When I lived in New York I had a Saturday morning ritual: 1...
View ArticleA GREAT EXAMPLE OF COMMUNITY SUPPORT
Last weekend was the third annual Running 4 Rob 5k event to support our family. This all started in 2013 when Melissa wanted to get a group of friends to participate in the Team Gleason Virtual 5k and...
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